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Editor’s Heroine: Grace Rose



Grace Rose at TwistMeet Grace Rose. Grace Rose is nine years old. Energetic and fun, I have always enjoyed her company in our fashion events when she comes with her mother, apparel designer, Leah Milana. In my humble opinion Grace Rose is beyond any nine-year-old. She is an inspiration to me. A vibrant and tenacious heroine.

On November 27th, 2002 Grace Rose was born with Cystic Fibrosis.  CF is a genetic disease that attacks the digestive system and the lungs. It shortens the lifespan of those diagnosed and there is no known cure, but with the help of her fundraiser, the Cystic Fibrosis Foundation raises money to develop drugs that prolong the life of people born with this genetic disease.

Grace Rose is a thriving and vivacious nine year old.  In order to stay healthy and full of energy, she has to complete two 45-minute lung treatments everyday as well as take several pills and medications throughout a given day in order to combat this disease. She also attends regular CF clinics and is observed by several physicians.

Each year she hosts her own creative fundraiser to help build awareness and raise money for the Cystic Fibrosis Foundation. By doing so, she believes she can help fund the research to find a cure. This year she wanted to have a children’s fashion show and showcase some of her own designs. Angelique Baby will provide several outfits and Grace Rose’s pieces will finish off the show and be auctioned for the cause.

Help us in celebrating the life of our beautiful, talented, acrobatic, stylish, dynamic Grace Rose and come raise money for a cure for Cystic Fibrosis at the Fashion Fundraiser today, July 27th at Twist on St. Charles Avenue.

Friday July 27th 5:30pm
Twist 628 St. Charles Ave
$25 Door | Proceeds Benefit The Cystic Fibrosis Foundation

5:30pm | Cocktails & Light Bites
6:30pm | Kids Fashion Show & Auction

**You can also donate via GR’s great strides link if you are unable to attend:
http://www.cff.org/great_strides/LeahBauer7824

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